Check, please

D Day has come.
Tumor resection tomorrow at 8am
Unfortunately, after everything Josh went through this week, including an unexpected surgery, they will not be able to remove the seizure sites.
The Doctor said that they could try laying down some more electrodes and look in other areas but it's all very risky. Especially since Josh has already had two previous craniotomies.
He said instead of having a nicely, tightly made bed where everything is nice and neat, Josh has a wrinkled, messy bed - making everything more complicated.
However, after hours of functional testing, the surgeon now has a good road map to use to make for a safer surgery. He has a better idea of where Josh's motor and sensory functions are so that he knows boundaries better.
The surgeon may decide to do additional mapping/testing during surgery if he finds it necessary.
All I keep thinking is, get us the hell out of here.

A Very Special Little Visitor

Seriously? - post by Fay

Small quarters, cabin fever, pain, stress, etc... This tiny room is beginning to get even tinier after so many days stuck in here, together.
He's getting grumpy and bossy and annoying.
He says to me tonight, "can they get a spare room for you?"
Can you believe that? Seriously, he said that!
But, I'm so glad. I'd take his totally annoying behavior over the way he's been for the last week, any day.
He's awake and communicating and not scaring the life out of me with his nonsensical mumblings and that's what matters.
I can't wait for all of this to be over and for us to be home.

Love

Friday's Functional Mapping, Not So Fun - post by Fay

The Functional Mapping was totally exhausting. It lasted for several hours and Josh couldn't even keep his eyes open. He was so frustrated but he hung in there. I wanted to tell them it was enough when I saw his discomfort but they were determined to get the data so Monday's surgery can be as accurate and safe as possible.
From what I could figure, they sent shock waves to the electrodes on his brain. They asked Josh to read out loud, repeat sentences, perform instructed movements and tell them if and where he felt a shock.
I'm sure Josh will be better able to describe it another time.
During the testing he had so much brain activity, they had to give him Ativan twice during testing to try and quiet or calm the brain activity. This made Josh very sleepy and testing really difficult for him.
As soon as it was over and the doctors left the room, Josh started talking nonsense to me again. He was completely out of it. Plus he lost all improvement in his right arm. It was totally limp again. When I called the nurse, she immediately got the doctors and he was sent for a CT Scan within minutes.
Fortunately, the preliminary results do not show any blood or brain shift.
So they said his behavior was most likely due to the Ativan and seizures during testing.
Josh slept the entire night and woke up much more himself .  Arm, speech and confusion have all improved but not as good as before testing. So, another scary set back and another scary night.
They have decreased his seizure med again because without a big seizure, they won't get the data they want. The small seizures they recoreded are not enough.
All night I waited, in fear, for that big seizure.
If it doesn't happen soon, plans will have to change. The grid cannot safely be left in for much longer.
This morning we're waiting for the doctors for an update.

PS 
When they changed his bandages, I noticed that he has an unexpected incision.
So, new scar - another unexpected development. I'm assuming that during emergency surgery, they made a new incison in order to release the blood and insert the draining tube 
(which we found out had a leak and has since been removed).