Sunday, February 8, 2015
Check, please
D Day has come.
Tumor resection tomorrow at 8am
Unfortunately, after everything Josh went through this week, including an unexpected surgery, they will not be able to remove the seizure sites.
The Doctor said that they could try laying down some more electrodes and look in other areas but it's all very risky. Especially since Josh has already had two previous craniotomies.
He said instead of having a nicely, tightly made bed where everything is nice and neat, Josh has a wrinkled, messy bed - making everything more complicated.
However, after hours of functional testing, the surgeon now has a good road map to use to make for a safer surgery. He has a better idea of where Josh's motor and sensory functions are so that he knows boundaries better.
The surgeon may decide to do additional mapping/testing during surgery if he finds it necessary.
All I keep thinking is, get us the hell out of here.
Saturday, February 7, 2015
Seriously? - post by Fay
Small quarters, cabin fever, pain, stress, etc... This tiny room is beginning to get even tinier after so many days stuck in here, together.
He's getting grumpy and bossy and annoying.
He says to me tonight, "can they get a spare room for you?"
Can you believe that? Seriously, he said that!
But, I'm so glad. I'd take his totally annoying behavior over the way he's been for the last week, any day.
He's awake and communicating and not scaring the life out of me with his nonsensical mumblings and that's what matters.
I can't wait for all of this to be over and for us to be home.
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