Back up to the Epilepsy Ward yesterday.
They had to add back his seizure med before the emergency surgery, so they had to start over with decreasing it.
We're anxiously waiting for seizures so that data can be gathered to help determine where the seizure activity is and to help guide the surgeon during tumor resection.
Today, they are planning to do functional mapping. Which is where they will have him do certain tasks (talk, write, etc) and look to see which areas of the brain are being affected. Dr. Chang emphasized the importance of the data in guiding him so he doesn't get to near vital functional brain parts during surgery.
Josh felt an aura around 3:30am but besides that, he has not noticed any seizure activity since Tuesday.
One of the nurses noticed that the drain they put in during the surgery to remove the blood, is leaking. So we are waiting for this problem to get resolved.
Josh is becoming irritable and extremely frustrated with the lack of control he has of his right hand.
He has been bedridden since Monday and he's feeling very uncomfortable. He has asked about getting out of bed but, I doubt that will happen. He's also longing for a shower.
We're waiting for the doctors to come by and give us information and tell us the plan.
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