Thursday, February 5, 2015

New Day, Fresh Start - post by Fay

I'm happy and amazed to report that Josh is back to himself (as much as possible after 2 surgeries and all that he's been through).
He is awake, eyes open, alert, speaking, eating, and even smiling.

Draining the accumulated blood has relieved the pressure on his brain and has eliminated most of his symptoms. Though his right hand is still weak, he can now lift his right arm.
He is properly medicated to be sure his pain in under control.

He doesn't remember anything after 3am on Tuesday, when his seizures started. Which is lucky in some ways because it was so horrible. I tried explaining to him that there had been a complication due to surgery and that he was being taken for emergency surgery because I didn't want him to be scared. However, he remembers nothing. In fact, today he said he didn't even know what happened until I told him today! This morning he overheard the doctors discussing it but he didn't know what had happened! He didn't know he went in for emergency surgery.

We've been through two brain surgeries before and I knew something was wrong. He was almost completely unresponsive and when he did mumble, it was nonsense. SCARY!
The only thing that he said that made sense was when the nurse asked him (during his hourly neuro exam) if he knew why he was in the hospital. His response was
"Crani-fucking-otomy".

In the past, by day 2, I could see some resemblance of Josh, but not this time. Josh was nowhere.

Today, every single doctor, nurse, and technician that cared for him yesterday says what a dramatic change he's had from yesterday. I can't believe he's OK. He was so bad off yesterday that I was worried there would be permanent damage

He may stay in ICU overnight but eventually, we are headed back up to the Epilepsy Ward and moving forward with the original plan.
It's going to get harder before things are better but, I'm looking forward to a happy ending...and soon!

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